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Date of Graduation

5-2025

Description

Background: Hypermobile type Ehlers-Danlos Syndrome (hEDS) is subtype of Ehlers-Danlos Syndrome that is a genetic connective tissue disorder with complexities involving joint hypermobility, tissue fragility and severe pain. Patients often experience misdiagnosis, medical dismissal and years of waiting for a diagnosis. Purpose: This study aims to evaluate the quality of life and diagnostic journey for patients living with hEDS.

Publication Date

2025

Document Type

Book

Degree Name

Bachelor of Science in Exercise Science

Degree Level

Undergraduate

Department

Health, Human Performance and Recreation

Advisor/Mentor

Hill, Julie

Committee Member

McGee, Josh

Disciplines

Counseling Psychology | Health Psychology | Social Psychology

Keywords

Research-Based

Surviving Their Stripes: the Diagnostic Odyssey and Impact of Life with Hypermobile Ehlers-Danlos Syndrome

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